Study for Patients and Families with Juvenile Arthritis

Patient Centered Care Among Families Affected by Juvenile Arthritis: A Survey Study

This anonymous survey study will ask patients/ caregivers about importance of knowing information about medications, gait-physical activity, measures taken at the doctor’s office and overall well-being as they manage juvenile idiopathic arthritis (JIA). The responses will: 1) help guide care teams in improving patient-centered models of care and trackable metrics for this understudied clinical population, 2) provide justification in external grant applications about the measures we propose to collect as we study JIA interventions. 

What is involved?

  • An anonymous survey that takes 10-15 minutes to complete

Who can complete the survey?

  • Patients aged 7-20 years
  • Caregivers to children with juvenile arthritis

Questions may be emailed to hkvincent@ufl.edu to enroll or learn more!

SAMPLE SURVEY

This study was approved by the UF IRB on 1.24.22; IRB protocol number IRB202200082.