Patient Centered Care Among Families Affected by Juvenile Arthritis: A Survey Study
This anonymous survey study will ask patients/ caregivers about importance of knowing information about medications, gait-physical activity, measures taken at the doctor’s office and overall well-being as they manage juvenile idiopathic arthritis (JIA). The responses will: 1) help guide care teams in improving patient-centered models of care and trackable metrics for this understudied clinical population, 2) provide justification in external grant applications about the measures we propose to collect as we study JIA interventions.
What is involved?
- An anonymous survey that takes 10-15 minutes to complete
Who can complete the survey?
- Patients aged 7-20 years
- Caregivers to children with juvenile arthritis
Questions may be emailed to firstname.lastname@example.org to enroll or learn more!